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Baby in urgent need of a home!

UPDATE 3/14/2017

His echocardiogram and abdominal scan are reported to be normal. We were told that discharge probably wouldn’t happen for 2 weeks due to him needing to be able to take regular full feedings each day. The hospital staff anticipates needing to watch him and make sure he is “feeding and growing” for about 10-14 days.

 

According to the MRI, the size of the brain and folding of the brain are both very abnormal. In addition, the doctor reported that his brain was smooth rather than having the usual creases and indentations of a normal brain. There are also abnormalities in the basal ganglia portions of the brain. With the multiple areas abnormality in the brain, it is likely that both IQ and movement will be severely affected. The doctors feel the baby will be globally and significantly delayed. Severe developmental delays and cerebral palsy are likely. A swallow study has been ordered for tomorrow to determine if the baby is aspirating while feeding. If he is aspirating during feeding, he will need to be fed through a g-tube. The test for Zika and chromosomal abnormalities has not come back yet.
We have had an overwhelming response to this case and are amazed at the amount of people willing to help. We are currently going through the families interested in adopting him and are working to choose a family this afternoon. At this point, we are only considering families who are home study ready and special needs approved. It is also required that the family be able to pay the adoption fees of $10,000 up front. If you are chosen, you will need to travel to Texas on short notice. If you meet these requirements, please email our intake coordinator at adopt@childrensconnections.org.

**UPDATE 3/13/17**

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We have a baby diagnosed with microcephaly who is in need of a family. It’s been a rough couple of days. At one point we even had a doctor tell us that this baby boy might not survive. After his MRI yesterday which was abnormal of course, the doctor reported that his was one of the most complex cases this doctor has ever seen. Yesterday he was still on g-tube feedings and the physical therapist said that trying to feed him had not worked well and caused him distress. She thought it would be Monday before they would even attempt bottle feeding again.

This morning when his adoption specialist arrived at the hospital, this baby boy was doing remarkably better!! All his IVs are out, he’s breathing room air and being feed with a bottle. She said he definitely has the capacity to let everyone know when he’s hungry! Now we just need a family!!

Baby’s echocardiogram and abdominal scan are reported to be normal. We’ve been told that discharge probably won’t happen for 2 weeks due to him needing to be able to take regular full feedings each day. The hospital staff anticipate needing to watch him and make sure he is “feeding and growing” for about 10-14 days, but of course, this can change.

Due to his current legal limbo with no adoptive family, we aren’t able to receive any written medical records for this boy. However medical information can be provided to this baby’s adoption specialist and she can prepare a written report. She will be attending his team meeting on Monday so she can receive the most up-to-date info. The neurologist will be able to give us more information on Monday, including information on life expectancy, since the pediatric neurologists are the ones who have researched and followed similar cases.  We plan to share this information with all approved interested families as soon as possible. After that, families will give their final decision on if they wish to be considered. We are wishing for a miracle family for this little boy!!! After a family is selected, we’ll arrange a video call with baby and his medical team. Following that the adoptive parents will need to travel to the hospital right away. We’re hoping that if all goes well, these events will all happen within 2-3 work days.

Thanks so much to those of you who have shared this baby’s info with others. Please continue to do so. Giving him a family will make all the difference in his life!

____________________________________________

We have a newborn baby who has serious issues and who desperately needs an adoptive family who can accept and care for him.

Baby: ½ Anglo, ½ African American, boy, born yesterday, March 8th
Risk Factors: Mom reports no alcohol or illegal drug use, smoked 2 cigarettes daily during pregnancy, no mental health issues; even so baby has serious special needs.

Mom learned that she was pregnant a month ago. She already has a boy, age 2, and is in school. She felt that she couldn’t handle a baby so planned to call an adoption agency after she arrived at the hospital. She wants a closed adoption for now and requested that she have no contact with the baby to prepare her for relinquishing. This morning, mom was told that her baby has microcephaly.

Microcephaly is a condition where the head circumference is smaller than normal because the brain has not developed properly or has stopped growing. Microcephaly can be present at birth or it may develop in the first few years of life. Signs and symptoms of microcephaly may include a smaller than normal head circumference that usually remains smaller than normal as the child grows, dwarfism, short stature, delayed motor and speech functions, mental retardation, seizures, facial distortions, hyperactivity, balance and coordination problems, and other brain-related or neurological problems; although some with this disorder may develop normal intelligence.

Depending on the severity of the accompanying syndrome, children with microcephaly may have impaired cognitive abilities. Some children with microcephaly will have normal intelligence and a head that will grow bigger, but they will track below the normal growth curves for head circumference.

There is no treatment for microcephaly that can return a child’s head to a normal size or shape. Treatment focuses on ways to decrease the impact of the associated deformities and neurological disabilities. Children with microcephaly and developmental delays are usually evaluated by a pediatric neurologist. Early childhood intervention programs that involve physical, speech, and occupational therapists help to maximize abilities and minimize dysfunction. Medications are often used to control seizures, hyperactivity, and neuromuscular symptoms. Some children will only have mild disability. Others, especially if they are growing and developing normally, will have normal intelligence and continue to develop and meet regular age-appropriate milestones.

The hospital where the mom delivered does not have adequate testing equipment to evaluate this baby’s condition. They have called in a pediatric neurologist. The hospital is keeping us up to date as they get more information. We don’t know how long this will take and it’s possible he will be transferred to another hospital.

We’re looking for a special adoptive family for this little boy. The full extent of his abilities will likely not be known by the time placement occurs.

This special needs adoption will qualify for reduced fees.

 

Please contact our office at 806-745-7995 if you can help in any way. 

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